A support group for families affected by Fragile X Syndrome. Cleveland Clinic Parent Notebook is Complete! We are excited to announce that the Parent Notebook for our Cleveland Clinic is complete! These are handed out at our Fragile X Clinic when families are newly diagnosed but there is information inside for all families dealing with Fragile X. We hope it is helpful! To view the Parent Notebook please click below. What Do I Do? FXTAS Treatment at Cleveland Clinic.

An account of a motorcycle expedition, from the top to the bottom of the Americas, raising money and awareness for the Fragile X Syndrome Society. Saturday, 14 February 2009. My route from Prudhoe Bay to Ushuaia. Wednesday, 4 February 2009. Flying over and into a beautiful white blighty was the absolute nail in it all. did that all happen? I will always think on these places and feel warmth. bye bye! Links to this post. ALDO, ROSA MARIA AND T.

The Fragile Xpress, Is dedicated in raising awareness regarding Fragile X Syndrome, Fragile X related disorders and Autism. We also want to create a network for you to stay up to date with current advocacy efforts. Tuesday, August 7, 2012. CDC - Features -Fragile X Findings - NCBDDD. CDC - Features -Fragile X Findings - NCBDDD.

What is it like to have FXS? Risks of having a child with FXS. Who should have carrier testing? Find out test results. FXS is the most common known cause of inherited intellectual disability. About 1 in 3600 males and 1 in 4000 females have FXS. The Fragile X Syndrome Carrier Screening Study.

Fragile syndrome, fragile x syndrome, sex linked disease, sex linked genes, genetic diseases, fragile x, genetical dna errors. Experimental drug to treat fragile X syndrome. An experimental drug designed to treat a genetic condition that is the most common cause of inherited mental retardation helped patients develop better social skills, according to a small study published in a major medical journal Wednesday. Retired teacher active with Fragile X Foundation.